Welcome to Living with Hip Dysplasia!
A source of support, helpful resources and good humour, for adults whose lives are affected by Hip Dysplasia.
Ultimately, the aim of this website is to give support to those whose lives are affected by this condition.
My name is Xandra and I have lived with hip dysplasia and all that comes with it, for most of my life. During this time, there wasn’t much in the way of support or information for me, I felt alone and that I was the only one. Then came the age of the internet and when trawling online, all I found was information about canine hip dysplasia. In recent years and with the growth of the internet, more information has become available and I want to make sure that anyone in the position I was, knows where to go to get that support.
When you look at the statistics available, it really goes to show how much hip dysplasia accounts for hip degeneration and subsequently the need for hip replacements, which are becoming more common in younger adults, like myself. In a previous arthroplasty registry based study, in Norway alone, dysplasia was reported to be the underlying cause in almost one third of all total hip replacements in patients under the age of 60. So any cause that may highlight and bring awareness to this condition is only good thing. It also goes to show how ‘not alone’ we all are in this. In America, data recently released from the National Hospital Discharge Survey confirmed this trend that has long been predicted. According to the research, the total number of hip replacements performed increased from 138,000 in 2000 to more than 310,000 in 2010. In the age group, ages 45 to 54, a 200 percent increase was seen. With technology improvements seen over the past 10 to 15 years, it is estimated that there is a 90 percent chance implants being used today are still functioning well at 20 years. As a result, many patients who were once told they were “too young” for a hip replacement are now able to undergo this surgery and return to an active lifestyle.
What you can find on this website
You can access Blog & News from the menu, which is a collection of news articles, light-hearted stories and blogs of experiences of living with Hip Dysplasia, including surgeries, pain management and generally how I cope and ‘get by’.
There is a Resources page to signpost you to all the information and support you’ll need – this is what I wish was available to me 20 years ago.
Also, there is a Forum page. This is YOUR page, YOUR space. To hopefully get the answers and help that you need. It really helps when you have somewhere to go where people understand what you’re going through.
If you’d like to find out a little more about Hip Dysplasia, or my individual hip story, that brought me to where I am today, please click on About page from the menu.
Finally, if you feel that there is something missing from this site that would help support others and you would like to see it included, please feel free to contact me on the email above.